Wednesday, January 25, 2012

Her Party

Liv's party went really well.  It was great to be surrounded by people that we know love Olivia and accept her for who she is.  I love watching her interact with all of her friends.  None of her friends leave her out because she can't do as much as them.  I also love all of our friends because they clean up after themselves to the point that there was hardly anything for me to do.  Thanks so much everyone.

Friday, January 20, 2012

My New Therapist

I did go to a therapy appointment to help with the stress.  I found a therapist that is 2 minutes from my house.  It's great to find someone so close.  But even better, I really like her.  She reminds me of my old therapist that I really liked and she helped me a lot.  I just feel like this is going to be a good fit.  She really seems interested in everything I say (yes I know she is paid to).  I left feeling like I had some hope again.  She gave me strength in just an hour.  I am going to see her next week.  I think this is just the thing I needed! 

Tomorrow is Liv's party, I better be ready for a bunch of toddlers in my house!

Wednesday, January 18, 2012

Every Day Stress

The stress is building up and I'm struggling to handle it.  Funny thing is that I handle Liv's health problems better than I do stress.  I feel overwhelmed with keeping the house clean, work, Liv's party Saturday, expenses, and finding enough time to please everyone.  I sometimes feel like Liv is the only one that shows appreciation and she can't even talk. It's just this on going cycle that every so often it gets to me and I have an anxiety attack.  I'm going to go to a therapist tomorrow.  I hope that I like her so I can take care of myself.  I know that if I don't, Liv won't have me being able to help her. 

Today Liv has gone 6 months without seizures!

Monday, January 16, 2012

A Day Off

Today we had off work, but we had Livy go to daycare.  She does so much better when she has a routine to follow.  Plus she has therapies that she gets there, so she needs to go as often as possible.  It feels weird being home without her.  My husband and I went to the movies, which we haven't done since she was born.  It's nice to get a break, but I miss her terribly.  There's another day in February that I think she will be able to go to daycare and give us a day off.  It's definitely a bittersweet situation.  At least I get to go pick her up soon!

Friday, January 13, 2012

Potpourri

1. July 18th was Liv's last seizure, so we are almost at the 6 month mark with no seizures.  6 months was the longest we've made it before.

2. We ordered Liv a preschool backpack and lunch box with her name on them and they are so adorable.  I can't believe she starts school in 3 weeks!

3. Livy is having her 3rd birthday party next weekend.  I'm so excited that she's really turning into a little girl instead of still being in baby stage (aside from her development).

4. Since we got her hair cut, it is so much easier to manage.  I can actually get a brush through it.

5. She was self-feeding pieces of bread last night.  She throws a lot of it on the floor, but it's great to see her trying to take care of herself.

6. She has really been practicing walking and pulling to a stand.  She realizes that this will help with her independence and she works so hard at it.

7. She has a GI appointment at the end of the month so we will see if her feeding schedule will change since she lost a pound.

I'm really looking forward to the weekend so I can spend time with her.  I miss her since I'm sitting here writing about her.  I usually try to put her out of my head while I'm work, but it's not working today.

Saturday, January 7, 2012

Liv's First Haircut

I took Liv to my salon to get her hair cut. I had no idea if it was going to work out or not but her hair was getting even harder to manage. She screamed bloody murder getting her hair conditioned. It had to get done or they never would have gotten a comb through it. After that, it was smooth sailing. She loved watching in the mirror. Her hair looks so cute and easier to take care of. Yay!

Friday, January 6, 2012

ENT Appointment

Liv had an ENT appointment yesterday.  It was just a 6 month check up.  She had a lot of wax in her ears so he had to get it out to look at her tube.  She went into the silent scream.  I didn't really think that what he did was any big deal but this morning she woke up with blood in her ear.  It's a little scary seeing that.  Well it definitely explains the crying.  We don't have to go back for another 6 months.  I've been doing specialist appointments with Liv since she was 6 months old.  I know how all of this works with referrals and whatnot.  The secretary was telling me that I would need one for the next appointment.  I should have just said ok and walked away but I didn't.  I told her that since she has Personal Choice, she doesn't need a referral.  The secretary was saying that since she has Keystone Mercy as an insurance as well, she needs a referral and that she is not going to be held responsible if she can't be seen.  Ok lady, who was going to hold you responsible anyways?  I understand that she works with lots of people that are difficult because it's the public in Philadelphia, but I think I have an idea since I've been doing it for over 2 years.  I don't understand why people feel the need to argue.  After she said that I of course just dropped and didn't say anything else, even though she was mumbling things like she was irritated with me that I wouldn't listen.  Oh well.

Tuesday, January 3, 2012

Epilepsy Walk

We are going to DC this year for the Epilepsy Walk.  Please donate even $5.  It will add up in the end.  Every year we raise about $700 and I hope to do the same this year.  It's not until March 31st, so you have time.

Olivia's Donation Page