Wednesday, February 29, 2012

Shoe Update

We heard that Stride Rite had shoes that fit over MAFOS so we decided to go there.  We talked to the lady and she knew exactly what we were talking about.  This was a first for us.  She even taught us the trick of taking the inside support padding out to create more space.  We actually bought 3 pairs of shoes and they fit without jamming her foot until she cries.  What a relief.  Pics will follow after she gets over the sickness.

Rough Times

It's been 7 months since Liv has had a seizure, but she has several on Monday.  Drew took her to the ER and they found a fever that triggered it.  It's been so long since that happened.  She has had many fevers since the last seizure and there wasn't an issue.  Her sickness is scaring me.  She's so loopy and out of it.  We can't take her off of Tylenol because she has a fever on it.  She missed 3 days of school and she's going to miss daycare tomorrow.  Drew is going to take her to the doctors in the morning.  It's been hard going to school while my husband stays home with her.  When there's quiet time, I feel like crying and sometimes I do.  I'm used to being home with her when he works, but now I know what he goes through.  My poor little peanut, get well soon!

Friday, February 24, 2012

Shoe Frustration

Buying shoes to fit over braces seems like an impossible task.  We have spent many hours doing this every time she needs new ones.  She recently got new braces and now her sneakers don't really fit anymore.  So we will be looking tomorrow at the mall.  It's not fun trying to jam her foot into many shoes and still come out empty handed.  We are realizing that you have to buy them about 2 sizes too big.  I have searched it on the web and found so ideas that other moms have mentioned.  I have ordered 2 kinds of sneakers and had to send them both back.  I'm hoping for more luck tomorrow.  This is so frustrating.  And she never gets to wear cute shoes, only sneakers.  I wish I could just buy her really cute shoes and forget it, but I know it's not the best idea for her development.  Ugh!

Tuesday, February 21, 2012

Neurology Appointment

Yesterday Liv had her 3 month neuro appointment.  Her meds are staying the same because she hasn't seized in 7 months.  The doctor is pleased with her developmental progress.  She believes that Liv will be able to talk in sentences, which is amazing.  So I have hope in that.  We asked if she would consider Olivia to be MR and she said that she will be diagnosed when she is getting tested to go into elementary school.  She said that she will probably be labeled MR but mild to moderate.  She said her issues with epilepsy will probably help her getting into a school more suitable for her and not a public school.  She doesn't think a public school will be able to accommodate to her epilepsy.  This will be helpful.  Here's for working hard for the next two years before kindergarten.

Friday, February 17, 2012

Liv's First Lollipop

We haven't ever given Liv a lollipop before, not really sure why.  The stick is small but she could still grasp it, which is exciting since she doesn't have good control over her hands.  She was confused at first.  She couldn't understand why she couldn't bite it, but once she tasted it, she kept putting it in her mouth.  So cute!

Thursday, February 16, 2012

Pink Eye

We noticed that Liv had pink eye on Tuesday night, so I knew I had to stay home with her on Wednesday.  We got her the eye drops.  We have noticed that for about a week, she has been waking up at 3 am and not going back to sleep.  She isn't fussy but just ready to start the day.  She's getting her ears checked today to see if it's an ear infection.  I am really hoping it is because I don't know how much longer we can do this.  I don't know what it could be if it's not or how we would even find out.  She looks healthy.  Hoping for a good nights sleep tonight.

Wednesday, February 8, 2012

1st Week of Pre-School

It breaks my heart to know that Liv cries when my husband drops her off at school.  She usually runs from him when she goes to daycare.  I know it will just take some time for her to get comfortable with it, but it still hurts.  I hope she is learning new things and I hope that she will start to enjoy it.  She is usually ok when they start getting her involved in activities.  I know she needs to be in school because she is 2 years behind and is only 3.  I'm just praying that she is having a good day!

Friday, February 3, 2012

Livy is in Pre-School

Liv had her first day of school on Wednesday.  I was very nervous since she isn't used to structured learning.  I took her and she was pretty shy at first.  I stayed for about a half hour and went over everything with her teacher.  Then I went to go speak to the nurse and spend a lot of time signing papers about her health care plans.  I went to go back to her room but she was eating breakfast and not crying, so I left.  I missed her and was hoping for the best.  When I got there to pick her up, she was eating lunch.  The lady feeding her has a talent.  She got Liv to eat a large amount for her.  I was shocked.  She was excited to see me and was ready to go home, but she didn't cry and she participated with the group.  I think she will do great once she starts to get to know the kids.  She will go 3 days a week.  I can't believe my baby is 3 and in school.  Time just goes to fast!