The diet is the worst thing that we have had to come across yet. There's a lot of weighing and make sure every morsel is consumed that it's driving me crazy. I actually can't believe that we have made it past a month mark.
Olivia's seizures in the beginning increased in frequency but decreased in severity. They have slowly decreased in frequency but I don't know if it will make her seizure free and without medication.
Olivia recently went back to her old eating ways and wants to skip meals. That doesn't work with this diet and we are struggling with it. We have to substitute her eating with a tube feed. I hate it!!!
The only thing that keeps me going is that she has gained some cognitively. She just recently started follow some one step commands and comprehending words and associating with the object. Of course it's items that she is very familiar with such as baby, daddy, mommy, school, car, chair, sing.
It is great to see her coming around and acting more like a child instead of a baby, but it's at a huge expense. I just wish everything could be "normal".
