I'm a parent of a special needs child. She suffers from 2 rare disorders which they have given her delays, epilepsy, and feeding issues. She has been diagnosed with autism and intellectual disability, as well. This is my blog about my life raising a special needs child.
Saturday, April 9, 2011
At My Wits End
I know it's been awhile, but that's because Liv has kept me so busy. I really haven't gone to work and my husband and I haven't been sleeping. Liv is in pain. I've seen 3 doctors and talked to 4 other doctors this week. She is on meds, but she is still in pain. I really don't know what to do. We are going to give it one more day. If she is fussy tomorrow, we will go to the ER. If they can't do anything, we are going to ask them to take out the tube. Her eating more and gaining weight at the cost of her being in pain is not acceptable. I'm so burnt out and feel completely helpless. I have done all that I can.
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