I'm a parent of a special needs child. She suffers from 2 rare disorders which they have given her delays, epilepsy, and feeding issues. She has been diagnosed with autism and intellectual disability, as well. This is my blog about my life raising a special needs child.
Wednesday, November 23, 2011
Getting Over the Guilt
Over the weekend Livy fell asleep downstairs and I carried her to bed. It was really dark in her room and I put her in her crib. She has a lamp next to her crib that turns on by stepping on the switch. I was looking for it but it was so dark. In the meantime, Livy starts screaming. I assumed it was because she was confused about how she got into her crib and wanted out. When I finally get the light on, I notice that her gtube is missing. Of course I went into freak out mode. Doctors said the hole can close up in 20 minutes. Well that made me realize why she was screaming, it was completely pulled out because I place her on it and when she moved, it was pulled out from inside her stomach. I find it in her crib and know that I have to put it in myself (hubby was gone). I was trying to put it in and she was crying and I felt horrible. I finally get it in and she crawls around like nothing happened. I then realize that I was supposed to use lube to put it in and that's why I had trouble getting it in. Since I was in panic mode, I didn't clean it either. Well she is fine and it took me about 3 days to forgive myself for it. At least I know what to do differently next time!
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