I'm a parent of a special needs child. She suffers from 2 rare disorders which they have given her delays, epilepsy, and feeding issues. She has been diagnosed with autism and intellectual disability, as well. This is my blog about my life raising a special needs child.
Friday, June 22, 2012
Dev. Ped. Appt. Update
Well the appointment didn't go as well as planned. I feel as if Liv is gaining in her progress, but the doctor didn't really think so. In the 6 months we had since the last appointment, she gained 1 month. She is really concerned about her lack of speech. We were told to see a occupational therapist to have her tested for sensory processing disorder and a speech therapist to work on her learning words. Mind you that she already has these therapies but she feels that it's not as intense and needs her to go through CHOP to get evaluated. We have noticed her getting stronger since she started seeing their physical therapist, so we hope to see big gains when we start with the others. It just sucks to have to make more appointments. I feel like that's all we ever do. She sees PT every Friday. Now we are going to add two more therapists, yuck! So the bad news is that they estimate her IQ to be a level 30 and intelligent disorder (mental retardation) is at 70. She will be diagnosed as MR when she is 5. I knew that was going to happen, but it hurts to hear it. Sometimes I just wish God would come and heal her. But I guess her purpose in life is to show others that they need to be determined and happy.
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