Friday, March 30, 2012

Epilepsy Walk Day 1

We are headed to DC now. Of course there's traffic, but Liv's asleep so that's helpful. It's exciting to get away. I can't wait to see the hotel. It's right downtown and next to everything. Hoping for a good time!

Wednesday, March 21, 2012

So Much Happening

I haven't written in a while due to Olivia being sick.  She consumed most of our time.  She had adnovirus and a uti.  This causes an outbreak of seizures.  She went 7 months without seizing and we forgot what it was like to be where we are now.  She started seizing before she got a fever, so my husband took her to the ER (while I worked) to find out what is going on.  They put her on back up meds for 3 days and said that she should feel better then.  She started seizing again when the 3 days were up.  She was put back on the med for another 3 days.  She started seizing when those 3 days were up again.  Ok so now we are on week 2 of the sickness and she is seizing.  I call the doctor and they said put her on the meds again.  The next morning, even the meds couldn't stop the seizing.  We had to give her Diastat too.  She still kept on seizing.  I had to rush her to the ER, but of course I had to stop and get gas.  It's raining and my daughter was seizing in her car seat while I'm getting gas.  I get her to the hospital and she starts seizing after I said her name to check her in.  They sound alarms and rush her into the trauma room.  There were about 10 people trying to get her to come out of the seizure.  It was nerve racking.  They stabilized her and took into a regular ER room.  She started to act fine.  They they gave her meds to keep her from seizing.  About 10 minutes later, she was seizing about every 3 minutes.  It was really hard to watch.  That went on for about 2 or 3 hours.  Finally they controlled them enough to get us admitted and into a room.  The neuro beds were full so we stayed in cardio.  That night she seized several times before going to bed.  The next day she only seized a couple of times before nap and bed.  The next day we got to go home.  She is on a second med to control the seizures.  I just hope this works.  We've been down this road before and experienced allergies and seizures.  In the past 3 weeks, that child has had so many seizures, I couldn't even begin to count how many.  At least a hundred.  We are home and Olivia is doing so much better.  She hasn't had a seizure since last week.  I'm sorry if this is confusing, but the whole 3 weeks were a blur.  I'm just happy everything is back to the way it was.