I'm a parent of a special needs child. She suffers from 2 rare disorders which they have given her delays, epilepsy, and feeding issues. She has been diagnosed with autism and intellectual disability, as well. This is my blog about my life raising a special needs child.
Saturday, February 26, 2011
All Systems A Go
Well we were cleared for her to still get the procedure and feeding tube. In two days, whenever I look at my daughter, there will be a tube coming out of her nose. When we go to the Epilepsy Walk in DC, she will have a tube coming out of her nose and we will have to take all of the machinery with us. Oh geez! I guess I never realized anywhere we go, we will have to take all of the equipment until just now! But it will make her healthier, I think. I think it will sink in even more on Monday. Who knows, maybe a miracle will happen and she will only be on it for a month! Bless my child!
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