I'm a parent of a special needs child. She suffers from 2 rare disorders which they have given her delays, epilepsy, and feeding issues. She has been diagnosed with autism and intellectual disability, as well. This is my blog about my life raising a special needs child.
Monday, February 21, 2011
Busy
I've been busy this week and that's the excuse for the lack of writing. Nothing eventful has happened. We went to a neighbors birthday party (one of Liv's friends) and I couldn't stay long. Liv is fearless about commando crawling through the rooms, but I'm not like her. There were a lot of adults and I was worried she was going to get stepped on. She can't walk so I don't think people would see her that well. It does get hard watching children younger than yours doing more things. I know Liv tries hard, and that's all that matters to me, but sometimes it would be nice to brag about the new thing my child just learned. I know I can still do that, but I would love to know what it feels like for my child to be the first to learn something new. Oh well. I am getting nervous since the procedure is in a week. I keep picturing my daughter with a tube coming from her nose and all of the pictures that will show that. At least we got 2 years worth of pictures without it. It makes me wonder what she is going to think when she looks back at her baby photos. Well I just hope she doesn't need it for too long and it will just end up a dusty old picture in our memories. I do try to remember the good times over the times in the hospital. I guess it's time to start prepping myself for staying a couple of days in the hospital. It's only a week away.
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