Sunday, May 29, 2011

A Good Month

So for the past month, Liv has been doing well.  It usually works like this.  Bad humps then good.  We just work on surviving the bad ones to make it to the good.  Then we easily forget how hard it was and get slapped with another hard one (really not trying to be sexual). Of course we are enjoying this time.  Liv got a button tube place back in and it's working great this time.  Feeds are great.  She is up to the 7th percentile in weight and we will be discussing what feeding strategy we are going to use when we go to GI on Tuesday.  As some of you have seen, Liv took her first steps this past week.  Yes it was with a medical walker, but it's just like her walking alone.  I can't stop watching the video.  For those who missed it, it's posted on my facebook.  The walker she was using was one at her daycare.  We had her fitted for one and we are just waiting for it to come in.  They said up to 3 months but really don't think it will take that long.  We are getting anxious for it to come in so she can practice all day.  We went swimming yesterday and she was using her float.  She was feeling adventurous and would swim away from us.  It's good to see her getting more confident with swimming.  I would like to get her just a vest this summer so she can really start swimming.  At Liv's endocrinology appointment we found out that she will probably only reach 4'6" so she will need to take growth hormones.  They aren't starting yet because she is a good height for her age now, so we are just seeing what happens.  They will also check her ovaries at the age of 9 to see how damaged they are.  They will then start her on birth control to help her get estrogen and a period.
Summer is almost here and that means lots of time with my baby.  I am going to be taking her all over and tiring her out.  I plan to do something everyday.  She is not just sitting around the house.
Here's to a good month and a future of time off to spend with my baby!!!

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