Last week we went to her ophthamology appointment. He thought everything looked great and we don't have to go back for a year! We have never been told that before!
Monday I took her to neurology and she is getting started on a second seizure med. I asked about her obsession with the girl in this one book and the doctor said that it can be a sign of autism but it is common for children with brain dysfunctions. Her obsession with me is due to her mental age still being 8-10 months and is at that stage that she can't leave mom. Problem is that we have been in this stage for over a year. She told me that Liv would probably go to a life skills school rather than special ed. She also pulled her attending in to see Liv because she has never seen a child with hypomelanosis even thought she has been a doctor for 20 + years. Her doctor told me the only reason she was diagnosed so quickly is because she was looking up neurological problems and came across hypomelanosis a week before she ended up in the ER. Where would we be if she looked that up a week after?
Today we went to the feeding clinic to get some suggestions of feeding Liv. She obviously has many issues but they only gave a 2 suggestions to work on daily for 6 weeks. At least we won't get overwhelmed. But it is making me see that this is going to be a really long process!
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